I'm slowly regaining use of my fingers. I can straighten them out but can't quite make a fist yet. I still have a long way to go in healing, and my elbow is still extremely messed up, BUT I feel sooo much better. I'm able to do more around the house and that is something I enjoy doing so it works well for everyone.
I've been working out a lot lately. I'm biking 2-3 times a week, doing pilates 2-3 times a week, and doing water aerobics twice a week. I have a lot of work to do. I need to lose three inches off each thigh, my hips, and my waist. My core is very weakened and because of the EDS it takes so much more work to strengthen things up. I am getting stronger though. In three weeks I've increased my mph on the bike by a full 2 miles and upped the endurance 4 whole levels. Starting next week I'll increase my time to 45 minutes when I do the bike, and 45 minutes on my pilates/strength training days.
It's been a while since I've updated as typing was very difficult to do. I can type again now so hopefully I'll update more.
Anthony wants to return to public school after the new year so we've been working with him and his doctors to make sure that can happen. We'll continue homeschooling as well to ensure he is being challenged. He is doing Tai Kwon Do now and loves it. He goes twice a week for an hour each time, and he gets to do it with his best friend Caleb so he really loves that.
Anastasia is done with soccer for now but can't wait to start it again in the Spring. Her last game she score 5 goals! We are making her a soccer shelf to display her team picture and trophy. Both her and Anthony will start swim in February.
David is talking so clear now. He understands and follows direction pretty well. He's still obsessed with playing with my hair. The other night he crawled into bed and I had the blankets pulled up pretty high, he pulled them down enough to play with my hair as he fell back asleep. It's pretty sweet.
Charlie can roll both ways consistently now, finally. No crawling yet, which I'm okay with. He can sit unassisted for short lengths of time. He is thinning out a lot too, which we figured would happen after 6 months. And he's getting hair! David and Anastasia were bald for 2 years. David JUST had his first hair cut and Charlie has nearly as much hair as him. It's not as red as mine and Anthonys but it's not as dark as David's and Anastasia's. It's right in the middle.
All in all, everyone is doing well, and I'm on the road to getting my life back on track!
You mean it's not normal?
5 years ago
Glad things are going well. If Anthony is going back to public school are you thinking about sending Anastasia as well? Take care.
ReplyDeleteAnastasia won't go until next year when she starts kindergarten. Pre-k is a pain when you have two kids on two completely drop off and pick up schedules.
ReplyDeleteI'm glad things are starting to look up. I can't believe how courageous you are. You are a role model to us EDSers everywhere. :-)
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