Around a year ago I began having issues with my elbow. I would go to straighten it and there would be immense pain, a pop, and then it would straighten. I was told it was due to the Ehlers-Danlos and was placed in physical and occupational therapy. For the past year I've been in and out of PT and OT, used hot and cold treatments, compression therapy, and drug therapy. My elbow, and both wrists have not been able to be rehabilitated. I DID rehabilitate my legs after losing my ability to walk last October. I've been trying to get an appt with Ortho to discuss surgery but they kept denying my referral. My doctor finally had me come back in to discuss other options, and took one look at my elbow and freaked out. He said it's pretty much completely destroyed. He thinks the joint is completely gone, the muscle, tendons, and ligaments are torn, and he's not sure they WILL be able to fix it. I have an MRI on Thursday to see the extent of the damage but he assured me if it can be fixed it will have to happen surgically. My wrists are not as bad and may require pins/wires, or a fusion.
"melody," a poem
2 weeks ago